Pathology was very slow this morning, not due to high volume but rather a function of staff shortages. When we arrived at Turner Ward just past ten half a dozen kids were already hooked up and receiving their transfusions.
Yesterday I thought Lliam would be able to skip this week’s platelet transfusion because I could see no spontaneous bruising anywhere on his legs or arms and no patechia on his tongue. However, this morning at breakfast during our normal morning tongue examination a single little patechia formed on the left side of his tongue…platelets here we come. Continue reading ‘Week 11 - Tongue Tip Test’
Just a quick note to thank everybody that have visited Lliam’s site since we launched it a couple of weeks ago. Most of our visitors were from South Africa, Australia, USA, Sweden and Canada.
As and when I get a bit of time I’ll be filling some of the chronological blanks, so don’t think I’ve lost the plot when you see posts appear in between existing posts. Continue reading ‘Visitors from every corner of the world’
Today was our last ATGAM infusion for this series. Hopefully it was our last ever, but that is wishful thinking as at least a second series is needed in 99% of cases. In most instances a third and even a fourth series is needed before blood counts return to normal or at least to such a level as to make the person transfusion independent. Continue reading ‘Day 62 - Phase Va - ATGAM’
After a good nights sleep for both of us they started the steroid infusion at 05h30 this morning. ATGAM was started just after 07h00 working up to a rate of 75ml/h again. All his vitals remained within the normal range. Continue reading ‘Day 60 - Phase IVa - ATGAM’
After last night’s nosebleeds they decided to do a full blood count before allowing Lliam to go out on a day pass. His platelet count came back at 29, which wasn’t too bad under the circumstances so a pass was issued. Continue reading ‘Day 59 - Phase IIIb - Off Day’
