Week 15 and for the third Wednesday in a row we were sent home with no transfusion. I almost gave them a piece of my mind for having me travel all this way week after week, just to go back home “empty handed” when I realized “Hey, empty handed in these circumstances is good, not bad.”
On Monday morning we got a call from Lliam’s school headmaster…”Chickenpox in the school”. I phoned Dr Juliana who told me to take him out of school immediately. This means we’ll have to give him home schooling for a minimum of 21 days after the last reported case of chickenpox at the school….hopefully there will only be this one child infected. Continue reading ‘Week 15 - Chickenpox’
Now, almost 100 days since we were informed of his condition, he is showing the first signs of improvement. Even though it is still very limited, it is something.
His red blood count remained low, but there were a good improvement in his platelet count. His count rose from 23/150 last week to 35/150 this week. The total white blood and neutrophil counts remained on par with last week, but the biggest positive is his reticulocyte percentage.
Continue reading ‘Week 14 - Hundred Days’
We are starting to get used to this Wednesday ritual. After picking Lliam up from school at lunch-time, we drive the 45 minutes to Westmead Kids where our first stop is Pathology for his blood work. Every week they tell him to increase his fluid intake, and this week was no different. The nurses had to try quite a few times before finding a vein that was willing to give up a bit of blood. They only need 2ml to do the basic tests, but even that isn’t as straight forward as one would think. Continue reading ‘Week 13 - Wednesday Ritual’
No improvement, but as I said in my previous posts, it is to be expected. Lliam’s platelet count is the same as last week, 19 (s/b min 150). His hemoglobin dropped a few points, but luckily far less than the previous week. The neutrophils also dropped a bit, but there seems to be enough left to keep him from contracting the cold Jahna has had for the past few days. Continue reading ‘Week 12 - Early Days’
