You will notice, again, that I took my sweet time to update this site to reflect the last blood tests that was taken in April 2010. The first reason is we have just been incredibly busy. The second reason, to be honest, is that the game has changed a little bit for us. Before we were told about Lliam’s PNH clone, we believed we were on the home stretch adding the last few updates on our way to a full recovery from Aplastic Anemia. Now we know we are in for a longer battle, during the course of which (at least for now) there is not much else to do but wait and see. We are, of course, still hopeful for a full recovery without the need for additional treatments. Lliam continues to do very well and you won’t believe he is sick if you if you saw him, for which we are very grateful. Many others are not so lucky, and we’ll get back to that shortly.
Just to get the results of the last blood tests in April 2010 out of the way then. The results of the standard blood tests we’ve been monitoring since we started this journey came back just great. His hemoglobin count was 130, White Blood Cell count 4.6, Neutrophils 2.7 and Platelets 136! All of the other indicators including HbF and MCV are normal or moving in the right direction. This is a far cry from where we started. It is really just the platelets that are not in the normal range yet, but we are getting close. All of these blood cells, aside from the fact that they are more fragile than normal cells, are doing the work they should, so Lliam is full of energy and well enough to continue participating in all the sports activities he wants.
Continue reading ‘July 2010 – PNH and the Petition - Soliris for Australians’
